Hello Laura and thanks for posting

I'm sorry to read about everything you've been through. Metastatic malignant insulinoma is a very rare and challenging condition. It can be complex due to it's potential to recur as you have experienced.

However, because it's metastatic ( spread) beyond the pancreas, it may become more difficult to control over time. For some people, repeated relapses can mean the disease becomes more resistant to treatment, and in those cases it may have the potential to become degenerative or eventually terminal. But each person's experience with this type of cancer is unique and advances in treatments are aiming to improve outcomes. Your specialist team are better placed to advise you further on this as they are familiar with all your medical details.

You may know this already but there is a support organisation called Neuroendocrine cancer UK ( NETs) who support people affected by neuroendocrine tumours.

I hope this has been of some help. Give us a ring if you would like to talk anything over. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Kind regards,

Celene