Cancer behaviours

My dad was diagnosed with stage 4 metastatic prostate cancer we were told that it has spread to bones, spine, liver. He was told he had a few weeks in September 24, my mum and dad made the decision not to have further treatments or scans, making this decision we have not seen an oncologist, or had any bone scans. 
My dad is still with us, in fact he seems stronger, he does not stop walking, his left leg is in a lot of pain, we finally got Pallative to give him Zopiclone as melatonin, lorazepam did not work, he does not sleep not even with Zopiclone, he says he is restless, filled with anxiety, we are lucky if he sleeps 3 hours straight. District nurses come to inject him with morphine and madazalam, which unfortunately does not work either. We have now been told by Pallative that this will be the way going forward. 
He is a lot angrier than before, he does not stop walking with his zimmer frame, he has a catheter which he hates, what do we do now? Please advise

  • Hi Thandit

    I am afraid that the nurses will not be back online until 27th December.

    I am not a nurse, however when my mum was dying, she suffered personality changes when she was on morphine for the pain.  She was very aggressive and also imagining things.  We managed to get her pain relief changed to Oxycodone and within 12 hours, she was back to her normal personality.

    It might be worth talking to the district nurses about the changes that you are seeing in him.  Hopefully you also have a telephone number for out of hours palliative care if he deteriorates over the bank holiday?  If not, ring 111 if your dad gets worse and they can put you through to your local out of hours cover.  I unfortunately went through this on Christmas 2022, I lost my mum on the New Years Eve, so I can sympathise how hard it is dealing with all of this at this time, when everyone else seems to be busy enjoying themselves.

    My thoughts and prayers are with you.

    Annie

  • Hello, Thandit and thank you for posting,

    I am so sorry to learn of your dad's situation this must be a very distressing time for you and your family.

    Unfortunately, the symptoms you are describing are common when someone is terminally ill and it can be trial and error getting the medication right because everyone is individual.

    As Anna has mentioned it is worth letting the GP, district nurses and palliative care team know, as they know your dad's situation and can adjust his medication if needed, you may have done this already.

    It might be a difficult read but we do have information about managing symptoms when you are dying, which mentions some of the symptoms you are seeing.

    If you would like to talk things through with one of our nurses, you would be welcome to give them a call on the helpline. The freephone number to call is 0808 800 4040 between 9am and 5pm Monday to Friday.

    Take care,

    Jemma