IV chemo cycle 2

Good evening,

I have started a new cycle of IV chemo cycle that will last until late March of 2025. I am somewhat nervous and anxious about the pain and side effects I am having in the first few days. I am aware this treatment is not supposed to be a walk in the park, but pain, worry and feeling at rock bottom is again a dark place for me.

Diagnosed with stage 4 lower anterior bowel cancer in March this year and a 7cm tumour located and lymph nodes affected, I quickly was fast tracked and received a colostomy stoma, 25 days of radiotherapy along with the oral chemo. 6 months later second major surgery to remove tumour successfully and then switch to Ileostomy.The biopsy from that op confirmed I have the cancer present in 10 lymph node’s and the only treatment available is intensive Chemo to try and mop up.

i had a bad reaction to my first IV chemo after the surgery no 1 which was similar to the symptoms of a heart attack, extremely worried the health team decided that it would be best to stop this and sain that because I have the IV in the back of my hand instead of a PICC line may have been the contributing factor.

i am looking for some advice on how to manage my recovery, I am a healthy 57 year old male who does a large amount of walking and nutritional intake, non smoking/drinking person who wants to find a way of minimising pain and mental strain. My medical staff are very helpful and supportive in offering me advice, but when speaking with them face to face I put on the illusion that I am in great shape and healthy and coping well. 

I have been ghosted by family and friends who are although sympathetic to my illness, seem reluctant to know how to deal with the situation.

Can anyone relate and recommend how to shake the feeling of being in a decline with this uncomfortable illness?

Merry Christmas to you and the team and the excellent service you provide.

Gary

  • Hi Gary 476 and thank you for your post.

    I'm sorry to read about your situation. This must be a difficult time for you. I am not surprised you feel at rock bottom.

    I recommend that you talk to your hospital team about the side effects you are experiencing. It's important to let your team know how you really feel.  There may be medications available that can help alleviate your pain and other side effects.

    People often experience a whole range of emotions when they have cancer. There’s really no right or wrong way to feel. But we know that talking can often relieve some of the distress and anxiety. Macmillan has some useful advice on how to cope. We also have some information on our website about cancer and emotions and tips for ways of coping.

    Some people find counselling useful. It may be possible for you to receive NHS counselling, but how long the waiting list is will vary from area to area. Some GP practices may also offer counselling. The NHS Website has information about accessing NHS counselling on their website. Macmillan Cancer Support have teamed with BUPA to offer free counselling for cancer patients.

      Maggies  are a great source of support for patients and can also provide counselling and talking therapies to help patients process what they have been through and help people cope and hopefully move forward. Maggies also provide support for family members who feel overwhelmed by the situation. You can talk to someone over the phone or pop in to one of their centres if you live nearby.

    You may also find it useful to read our webpage on what you can do to help yourself .

    I hope you find this helpful 

    Please get back to us if you need any more information or support. You may find it helpful to talk things through with one of the nurses on our helpline. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

     

    Kind regards

     

    Tina