Following the removal of my appendix which contained a low grade tumour 5 years ago I have had a 1, 3 and 5 year CT scan (and colonoscopy).
The last CT scan on 19/7 showed 3 enlarged lymph nodes up to 17mm - ‘suspicious of disease recurrence’ according to the radiologist. I was told this on 4/9 at an appointment with the colorectal specialist nurse who immediately made appointments for a PET scan 13/9 and 2 colonoscopies - 16th and 26th of of September (both were unable to get around my colon)
I know my scans have been sent to a hospital which have a unit that specialise in my problem? I have not heard anything since and am getting really stressed out. I have phoned my colorectal nurse 5 weeks running who has been very sweet however all I get is when the specialist hospital have looked at it they will refer back to my hospital where an MDT team will have to decide how to progress from here.
i know this is long winded however i am getting desperate and wonder whether you can give me your thoughts or any advice.
Thanks for reading
