My aftehr has had a recent diagnosis of CMML adn I am trying to find out what questions I shoudl be asking to better uderstand what it is, what should i be worried about, what do we do next?
I’m sorry your relative has been diagnosed with CMML (chronic myelomonocytic leukaemia) and can appreciate you wanting to to have a better understanding about what this might mean for them.
How CMML is managed is quite variable and will depend on various features of the disease. But the best person to discuss this with is your relative's specialist team as they are familiar with all their medical details. They will advise on what needs to happen next. They are usually happy to speak to relatives provided they have the patients consent.
If your relative has a specialist nurse involved in their care then perhaps they can provide them with further information. You often have to call and leave them a message and they will get back to you.
You can read more about CMML on our website. Leukaemia Care has some further information which hopefully will help in understanding more about it.
The following questions may be helpful to ask your relatives healthcare team:
What is CMML and how rare is it?
What treatment will my relative need?
How long will the treatment last?
What will the side effects be?
Do they need any further tests?
Is there anything they should or shouldn’t eat?
Where can they get help with claiming benefits and grants?
Where can they get further support?
I hope this is of some use. Give us a ring if you would like to talk things over. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.
