My 58 year old brother was diagnosed with oesophageal cancer in September. He was told about 'the plan' to scan, then keyhole, then chemotherapy, then remove the tumour. But it hasn't gone like that. After finding a suspicious element in his neck, he was told by email that it's going to be another scan instead. This was done 2 weeks later, then another 2 weeks to decide to have a biopsy. Then another 2 weeks to find that the biopsy was done incorrectly, then another 2 weeks to be redone, then another 2 weeks for results. Meanwhile a week in hospital to have a feeding tube fitted. Now, he's been told that a stent is planned, then chemo and palliative care for a possible 12 month remaining life expectancy. There seems to be huge periods of time with no contact given, then the possibility of a change in plans to my brother's detriment.
My brother, and the family, are unable to prepare for any next stages, as there seems to be plans, then periods of time elapses before anything positive happens. The waiting is the worst. My brother just wants the tumour removed as per the first plan. As his big sister, I'm not sure what to do. Any guidance for myself to help my brother, his family, and our parents, would be a great help. Many thanks
