Poor recovery from anterior resection - is this normal?

My Mum just had an anterior resection of a 50mm tumour in her rectum. The surgery was 10 hours (we had expected 4) and a stoma fitted (as expected). She was very unwell and developed an ileus (her bowel stopped working). Her operation was also on a Friday so she had very poor care over the weekend and nothing was picked up until the Monday when the regular staff were back in. She had to have a tube down her nose to drain her stomach for 2 days. She was discharged the following Thursday although I felt they wanted the bed back more than she was well enough to go home. Since being home she's not really been able to leave bed, she was a very active 67 year old before and did 16-20k steps a day. When she stands up her heart rate soars to 130. She's been to the GP and there is seemingly no issue. She's now developed severe pelvic pain and vomited again yesterday (2 weeks and four days post op). The skin around her stoma is also very raw and sore too but apparently normal. It feels as if she will never get better. She is now very miserable, her face is sallow and grey and she can't enjoy any food. She's always been fussy and there is likely some psychological block with food and I'm sure this is impacting her recovery but I'm also concerned about her heart rate, inability to move/stand/walk, and now the pelvic pain and vomiting. Will it ever improve? She's been to the GP twice, we had a stoma nurse appointment, recovery stopped calling after four days (and she was no better then and we've never seen or heard from the surgeon since the operation. I wake up worrying she'll have died in her sleep. She said she's wondering if it was even worth having the surgery as she felt well beforehand (we would never have known she had cancer). She knows that isn't true but I think she's starting to think she won't recover from this and that this is the end for her when she was otherwise well. I'd love some information on whether this is normal, if anyone else experienced such a bad recovery, if she'll ever feel ok again.... they've told us today that they might offer her chemo as preventative (it hasn't spread) but I'm worried she'll say she can't face it. Thanks in advance. 

  • Hello Spencer180 and thank you for posting,

    I am sorry to hear of your mum's situation this must be a difficult time for you all.

    It sounds like it was a big operation and it was just over a couple of weeks ago. Having surgery like this can take a long time to recover possibly weeks, depending on the situation and whether or not there have been complications for example infection.

    I wasn't sure if your mum has been in touch with her nurse specialist (CNS), it might be worth giving them a call and talking through her concerns especially if she feels things are worsening rather than improving. If your mum is still having discomfort with the pelvic pain she could speak with the GP as they may be able to recommend other pain relief.

    It may be helpful to re-post this to the 'living with cancer' thread so that others who have had a similar operation can give their own experiences. Although everyone is individual in how they react and recover from surgery, hearing from those going through similar may be a support

    I hope this helps a little and your mum starts to recover soon. Please feel free to get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Take care,

    Jemma

  • Thank you for your help. The colorectal nurse did call yesterday about an update from her surgery, but she said to go to the GP We have been twice to the GP but they said they can't work out what is wrong. It feels like there's no one that understands why she is so unwell. Thank you for your advice, we will keep trying. Best wishes.

  • Just in case anyone is searching this in the future - after I wrote this post my mum was rushed to A&E with a pelvic abscess which we subsequently found was caused by contracting treatment resistance E.Coli in hospital and she developed septic shock and her kidneys started failing. We got there just in time. She's on the mend but much slower. We are not sure she will be well enough to do preventative chemo within the 3 month required window. 

  • Hello Spencer, and thank you for updating us.

    I am so sorry to hear about your mum, that's very stressful for you.

    I hope you are getting support at this time and looking after yourself.

    Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Take care,

    Sarah.