Nhs immunotherapy funding

I have stage 4 lung cancer which has been kept stable by maintenance immunotherapy. I have received this every 3 weeks for over 2 years with minimum side affects. I have scan every 3 months showing my tumour is stable and even shrunk by 5cm in my August scan. I was then told that I had reached the maximum funding that nhs would provide for immunotherapy and my treatment was stopped. I am absolutely devastated and feel totally disregarded being told I will still receive 3 monthly scans and telephone consultation but no treatment!!! I could accept my treatment ending if it was not working but am finding it very difficult to accept because of funding, is there any way I can fight thos and get extended funding?

Parents
  • Many of these drugs are only licensed for use for a maximum of 2 years. If they stop working then even less.

    The cost of these drugs can be 10s thousands pounds per year. I am about to start a course of immunotherapy, the cost is estimated at £80,000 per year. just for the drug. That is without the clinical care dealing with side effects etc. Over 2 years say £200,000 the opportunity cost is 20 hip replacements giving 20 people a new lease of pain free  life against just giving one person, me, an extended life. There is just not unlimited money available.

    On the plus side I'm told that these drugs often continue to give a benefit after they are stopped by training your immune system to continue attacking cancer cells. Im hoping that this is the case both for you and me. I'm in the same boat so to speak, palliative care treatment and as such totally sympathise with your plight.

    Ed

  • My husband was the same 2 different. Sorts of immune through pick line washed out every week by district nurse then bloods every 3 weeks before treatment he was fantastic on the treatment then it stopped 2 yrs later tried tablets no good then in may got told mths now like sitting on a time bomb every body says how well he looks still got sense of humour at my expense but it's starting to make him weaker now.we will take each day as it comes told him he's got to still be here for our golden wedding in may next year because I want a big gold medal

  • Thank you for your reply, it is awful when people's lives are controlled by funding! I do hope you and your husband have a wonderful anniversary and you get your gold medal

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