Hi Kimkey and thank you for your post.

I am sorry to learn of your situation. This must be a very frustrating and disappointing time for you.

Immunotherapies are very new ways of treating cancer and the data about them is still growing.

Immunotherapy is administered for a limited time, usually a maximum of two years. After this period, the treatment is discontinued. This can understandably be a very anxious and frightening experience, as it may feel like a successful treatment is being taken away.

However, there is some evidence from other types of cancer, such as melanoma, that stopping treatment does not necessarily halt the patient's positive response. In some cases, the immune system becomes reprogrammed to better recognize and combat cancer cells.

You have probably done this already but it might be worth speaking to your hospital specialist or specialist nurse (CNS) as they know your situation and may be able to offer you advice. We do have information on our website about ways to access treatment on the NHS that may be helpful to read.

You may also like to read our Find a clinical trial webpage to see if there is a clinical trial using immunotherapies that you may be eligible to enter.

I hope this helps a little and the links above are useful. 

Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Kind regards,

Tina

Thank you for your information,  I will take a look at the links you have suggested 

Thank you for your information,  I will take a look at the links you have suggested