breast cancer that has spread

I was diagnosed on the16th August and told I had lung cancer which had spread to my adrenal gland and brain I was also told I had a nodule in my breast. After having biopsies in my lung and breast I was told it wasn't in my lung but it was a rare form of breast cancer which has caused a large tumour in my chest. I have an appt with the oncologist on Friday and start chemo on the 22nd. What is worrying me the most is that for about a week I've been having abdominal pain and some back pain. Paracetomol worked at first but now it's not doing anything. I started on steroids this morning which the oncologist sent me. I'm in a lot of pain and can't sleep but I live alone and don't know who to contact about it.

  • Hello and thanks for posting

    I'm sorry for what you are going through right now. It sounds like like a very tough time, especially with the new pain you are experiencing. It's understandable to feel worried, especially when you are dealing with so much and managing it alone.

    The best thing to do is to get in touch with your GP or oncology team to let them know how much pain you are in. They can assess you and try to establish the cause of your pain. They can also prescribe pain medications so you are more comfortable.

    Some painkillers can take a while to work and the doses may have to be increased or the pain medication needs to be changed, but this has to be done under medical supervision. We have some information  on our website on how pain can be managed.

    I’m not sure if you are being supported by a palliative care team, often they are known as the Macmillan team. These specialist nurses and doctors are experts in controlling cancer symptoms such as pain. They can also provide emotional support to you. You can read more about their role on the Macmillan website. If you do not have a palliative care team involved in your care you can ask your GP or hospital team to refer you. 

    I hope this is of some use at this difficult time. Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Kind regards,

    Celene

  • Thank you for your reply,  I was really feeling down last night when I wrote but thankfully today I have felt much better. My steroida arrived yesterday so I took them yesterday and today. I have only taken 4 paracetomol today.

    I am going to see the oncologist on Friday and starting chemo next Tuesday. I am aware of the side effects but don't just want to give up.I'm glad that they're prepared to treat me even though I'm 81. One of the consultants I saw said I wasn't an average 81 yr old. I have a good social life and have a lot of good friends so I'm prepared to try to prolong my life especially for my family. I know it's not curable but hope to slow it down. x

  • Good luck great grandma xx big hugs sending your way xx 

  • Just remember your not alone 

    we are all here to chat anytime xxx love Lara xx