Hi John and thank you for your post

 I'm sorry to read about your dad’s situation . This must be an incredible difficult time for you and all the family. 

It is hard for us to comment on your dad’s situation as we are not involved in his clinical care and don't have access to his medical details.   If someone is not receiving treatment then they are usually offered palliative treatment. Palliative care usually involves looking after people in the last months or weeks of life. But this can be difficult to predict. The aim is to control symptoms and keep the patient as comfortable as possible.

People who are receiving palliative care are usually referred to the palliative care team or local hospice.

Hospices provide end of life in patient care, but also they can offer day care placements, community palliative care and physical, emotional, psychological help and support groups for both your dad and family members.

You can read more about end of life and palliative care on the Marie Curie website.

Macmillan or Maggie's can provide patients and loved ones with support and information and can also advise on what benefits and grants that may be available.

We have a section of information about getting support at the end of life on our website that may also be of interest to you.

Right now, supporting him and  taking care of yourself  is important. 

I hope you find this information useful.

Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Kind regards,

Tina

Cancer Information Nurse

Is there an option to get his medical records sent to cancer research uk . Not sure what medical notes we are going to receive from the hospital after diagnosis.  Thanks for replying. John

Hi John and thank you for coming back to us. 

As we do not have doctors and are not a hospital we are unable to give a medical opinion. So we can not look at medical notes.

I am sorry that you all feel so in the dark about what is happening with Dad, but as my colleague said we would suggest you discuss this with his palliative care team.  He has hopefully been referred to one as they can visit Dad at home with you or other family members there. This team has doctors, as well as specialist nurses, who are very experienced in patients like your Dad so they can review him and give you their opinion of what is happening right now. 

Unfortunately, Dad does sound very poorly, so all the time that you can spend together as a family is important. Getting the local team to come around will also help Dad's quality of life and management of any symptoms he has so that you can try and have time together. 

Take care of yourself , John. It is a lot to take on. If you want to talk things through with one of the nurses on our helpline the number to call is Freephone 0808 800 4040, and the lines are open from 9 am till 5 pm Monday to Friday.

Sarah.

Hi I have some more medical information regarding my Dad following the update of the biopsy. Can I add here. Obviously just the diagnosis findings and jargon

Thanks 

John

Hello John and thanks for your further post

As nurses, we don't tend to interpret medical reports or provide a medical opinion as this is something that needs to come from your dad's specialist team as they are familiar with all his medical details. They will be able to put the results into context for you provided they have your dad's consent to do so.

If we can help with anything else then please get back to us.

Kind regards,

Celene