Kidney cancer - no support

Really hoping somone on this forum can offer some advice.  My father had been diagnosed with kidney cancer.  The challenge is he only has one kidney.  He has decided not to have it removed and go on dialysis but is getting no follow up support or care.  We know the outcome is terminal. He is passing bloody in his urine which is getting steadily worse.  We seem to be getting no support from the hospital.  No follow up or ongoing monitoring to keep an eye on if its spreading to other organs, or support of any kind.  Just stuck in the no mans land which is hugely stressful for him and my mother especially..  He just seems to be being left to fend for himself, which seems absolutely crazy to me.

Any advice on how we could get more support for him even if its just somone to reassure, would be hugely useful

Thanks in advance 

  • Hello and thank you for posting,

    I am sorry to learn of your dad's situation, this must be a difficult time for you all.

    I wondered if your dad has a specialist nurse (CNS) who you could talk to about your concerns. If you have your dad's permission to speak with his team you could contact the nurse, you may need to leave a message but they should get back to you.

    It may also be worth your dad speaking with his GP to find out what support he can have at home. He could ask about being referred to a Macmillan/ palliative care nurse they specialise in managing symptoms and are good support for both your mum and dad as well as the family. They can be hospital or community based. This is something that can be arranged by his cancer team at the hospital or GP.

    If you would like to talk things through with one of our helpline nurses you would be welcome to give us a call. The freephone number is 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    I hope this helps a little, do come back to us if you need further information or support.

    Best wishes

    Jemma