Since Last Xmas I have had numerous tests- all negative. First of all xray looked like pneumonia but nit definate ar bottom of right lung/ gave me a mucus cough.Since then I have had 2 CT scans- bronchoscope- needle lung biopsy / finally diagnosed with organused pneumonia and given steroids- took last steroid 3rd Aug. For last 9 weeks have lost use if legs- absolute agony and called proximal myopathy! Have been paying to go for physio. Was told diagnosis was wrong and steroids did nothing although lung has improved slightly. Was told only 2 options left- either inflammation ir cancer so had pet scan laat Thurs which did show some abnormality at bittom of lung but they dont know what! Have now been asked to have another needle biopsy but have asked for alternative. I am so stressed and scared- have completely lost my appetite.Have asked to see someone higher as cant take no more! Had to cancel cruise 3 weeks ago as couldnt walk. Any advice please?
Thankyou for reading xx
