Back to breast pain 10 month after radiotherapy

Can anyone give me a bit of help. Today I just ended up losing the plot. My mum is 86 she was diagnosed with lung cancer this time last year then had radiotherapy and was given the all clear and 3 month referrals. Since the radiotherapy she’s had the worst back pain radiating under her arm into her breast and nipple she says it’s like she’s on fire and extremely painful more in the morning. She’s been back to the hospital and our gp’s countless times she’s had Ct scan and they’ve said nothing untoward there. My mum says she’s still got cancer and convinced herself of this.  Macmillan came round about 6 month ago and advised her about meds and that was it we’ve not seen them again. 
last couple of week she’s been at the gps 4 times she’s in that much pain they’ve moved her from morphine to oxycodone and pregabalin and she like a zombie. My dad has Parkinson’s and she’s arguing with him about the meds. My partners mum dies 2 days ago and then this morning I rang dad to speak to her but she was screaming in agony.. 

i rang the hospital's hotline they just said nothing there. I’ve rang loads of numbers for Macmillan I just want someone to come and sit with her properly so she can talk to them. I’ve been in hysterics all day because nobody is getting back to me. I thought when Macmillan came 6 month ago they would keep coming every now and again. 
im sick of taking her to the gp because he goes off the hospital's letters and says nothing there. I’m sure they think she’s making it up. I’m really struggling I’m not a doctor and I don’t know what to do. 

i rang Macmillan at 9am  for my local team to ring me today and nobody has contacted me. 

am I doing something wrong ? Please help 

Parents
  • Hi jemma 

    a lady from Macmillan her name was jemma as well. She rang me on no caller Id at 15.09 just after I posted. We had a discussion and she said mum needed a visit and she would text me contact details for her and her colleague going forward and also ring me with a time she would visit tomorrow. Anyway nobody’s rang back about the visit tomorrow and I’ve received no text with contact details at 18.55 .  So I’m none the wiser and again feeling let down. I just don’t know what to say. 

  • Hello Daisydoowhereareyou1

    I'm so sorry to read about the situation you find yourself in and that your Mum is struggling with pain management. I can understand the frustration you're experiencing when you've repeatedly reached out to health professionals for support with Mum's pain management and yet things are no better. 

    As it's now the weekend and you've no confirmation if someone will be calling to see Mum tomorrow, I'd suggest calling NHS 111 for advice and support. Often they have contact details for other local services but if a home visit from a doctor is what's needed then they will also be able to arrange this. 

    I really do hope that you can make contact with someone who can give your Mum, and you all as a family, the support needed to improve Mum's pain management. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

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