Stage 2 Breast Cancer diagnosis

Good morning I have recently been diagnosed with type 2 breast cancer.  I have one invasive breast cancer site and one DCIS site which are next to each other and the surgeon has advised he can remove these with a lumpectomy.  However there are 5 more calcification sites one of which has been biopsied and has come back as a risk lesion which is too far away from the other identified sites to remove as part of the lumpectomy.  The surgeon said he cannot recommend a mastectomy as he does not want to over treat.  He would do a mastectomy if that is what I want.   However there are another 4 sites of calcification which could or could not be risk, DCIS or invasive.  I am having a further biopsy this week and if this comes back DCIS or invasive then my decision would be to have a mastectomy and tissue reconstruction at the same time.

I am torn about this as if this biopsy comes back as benign I am back in this same position.  I am quite resigned to the fact that I have a breast cancer - originally concern showed up on a mammogram I had in June and I just want to get to a place where a decision is made regarding my treatment.   I wondered if you are able to tell me if I have a lumpectomy and leave behind any risk lesions, how will these be monitored to see if they are becoming a cancer of DCIS.   I have been told that whatever treatment I decide on I will be monitored with annual mammograms but my experience is that the risk lesions need to be biopsied to see what they are exactly and this cannot be identified from a mammogram alone.

I know that 1000 of women have to make these decisions and my family and friends are extremely caring and supportive but it is my decision - mastectomy or lumpectomy.  I am 68 years old, my husband and I have been together for 50 years.  He had prostate cancer 9 years ago.   From an aesthetic perspective losing a breast does not really concern me - only he and I see my naked.  But I find it very hard to reconcile how I am now to how I would be after surgery and treatment.  I do not feel ill, I am fit and active and well.  I have 3 children and 4 grandchildren and want to be around as long as I can, as healthy as I can to be there for them.  I am the strength in the family and am always there for any of them.

I appreciate the opportunity to be able to contact someone with these thoughts.  Many thanks.   Janet

  • Hi Janet and thank you for posting,

    I am sorry to learn of your situation this must be a difficult time for you. 

    It can be very stressful having to make a treatment decision. You may find it helpful to look at Macmillan Cancer Support's information about making treatment decisions.

    As cancer information nurses who are not involved in your care we cannot say how you will be monitored, only your hospital team will be able to confirm this for you as they know your situation. This may vary from hospital to hospital but usually, the follow-up is annual mammograms, if any changes are noticed then further biopsies may be done but your team will clarify this for you. 

    You may find it helpful to discuss things in more detail with your breast nurse specialist especially if you are finding it hard to to make a decision.  

    If you would like to talk things through with one of our nurses, feel free to call our helpline. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Take care, I wish you all the best with your decision,

    Jemma

  • Hello Jemma, thank you so much for your reply.  It is much appreciated.  I have contacted the breast nurse specialist at my hospital and am waiting to have a conversation with her.   I know that the decision is mine to make but thank you again for your response.   Best wishes Janet