ECP

I have GVHD of the lungs and have been on 2 different pills and been told that the next step is ECP. Has anyone else experience of this

  • Hello and thanks for posting,

    Unfortunately, we do not have direct recent clinical experience of this specific treatment. There is a patient's experience blog on the Anthony Nolan organisation's website. They have a patient forum that you could post on, and other users may respond.

    Your hospital clinical nurse specialist (CNS) may be able to provide further information for you. Sometimes they can put you in contact with other patients that have had this treatment. 

    I hope this helps, 

    Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Yours sincerely,

    Vanda