I had a blood test at the end of April. The result was abnormal with elevated white blood cells that were ‘different’ to each other. I was referred to haematology, and saw her on 20th June. She said that it looked as if I had CLL, mentioned some large granules, and that it seemed as if I had had the condition for around three years. She emphasised that it was not an acute leukaemia, but that they needed another blood test to send to Cardiff for a diagnosis. That took 6 weeks. I saw a different haematologist on 1st August, and was told that the diagnosis was not what they expected - and that I had rather a rare diagnosis - she only had four on her ‘books’ and I am the fifth. She explained that my condition has some ‘clonal’ NK cells (at least I think the word she used was clonal). My sister came in with me, but neither of us could recall some of the things said. I had meant to ask her to write it down, but we both forgot. Anyway, she said that it is mild, and that at the present time, they do not advise treatments because they could make me feel even worse than I do now. During the appointment I asked if it was called Natural Killer cell leukaemia, and she said ‘yes’. I believe she also said that the high WBC was neutrophils. BUT, she also said that I am neutropenic. She ordered another blood test which I had before I left, and I was meant to have some literature about the illness. The literature was forgotten by me and by the nurses. When I got home, I tried to look it up at home online - but could only find NK cell leukaemia which is aggressive - and I know that this is NOT. I rang her secretary then, and was given the diagnosis which is ‘NK cell Lymphocytosis with neutropenia’ - I still cannot find any more information online about this. I would like to know if it IS Leukaemia or not. A relative of mine has said she doesn’t think it is. I had told my family that it is leukaemia, but maybe it is not. I am now over 80 and have a lot of other health problems. I would be grateful for further information - I have another eight weeks before I see the haematologist again. It seems a long time to wait. Thanks in advance.