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Cup

Nikkijj73
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Hi I'm a bit of a question mark at the moment,I've had ovarian tumour removed 5 weeks ago,which then turned out to be not ovarian cancer......after petscan I have now been labelled with the "cuppas I'm now an unknown primary as thru cannot pinpoint the primary source....my petscan flagged the colon but my colonoscopy is clear so is mri,so is ct scans......how do I feel about this?I had heard of cup an researched it an I felt after my results thursday that I was actually pleased it hadn't shown up all over my body,now I'm doubting myself an worried it is still bad news....I asked if now I will have chemo as a preventative an they said yes....but some people have said with cup it literally is a death sentence an now im doubting myself.

  • Hello and thanks for posting

    I'm sorry to read about what you are going through.

    Cancer of an unknown primary (CUP)  can be challenging to treat. This can feel overwhelming but it's important to know that there are treatments like chemotherapy which can help manage it. Your specialist team will tailor your treatment to your specific situation and will do everything they can to help you.

    We have information on CUP and how it may be treated on our website

    Easier said than done but try and take things one step at a time. Some people find talking it through with family and friends and keeping busy can sometimes help. Also try and focus on what you can control right now by eating a good diet, getting enough rest and do some gentle activities that you enjoy, 

    Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Kind regards,

    Celene

  • Offline in reply to CRUK Nurse Celene

    Hi my husband has just been diagnosed with secondary bone cancer from unknown primary. 
    It is so difficult to get your head around it and we are still waiting for a plan! 

  • in reply to 1972Tracy

    Hello and thanks for posting

    I'm sorry to read about what you and your husband are going through with his recent diagnosis. This must be an incredibly difficult time for you both and it's completely normal to feel overwhelmed right now.

    Try and take things one step at a time for now. Your husband's doctors are likely still gathering information to figure out the best way to treat him. This can involve more tests, discussions among different specialists and exploring different treatment options. They will tailor his treatment to his specific situation and will do everything they can to help him. 

    We have information on cancer of an unknown primary (CUP)  and how it may be treated on our website.

    Some people find talking things through with family and friends and keeping busy while waiting or a treatment plan can sometimes help. 

    I hope you both know more soon. Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Kind regards,

    Celene

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