Fast progressing lung cancer thats spread to other areas,

My dad has been diagnosed with lung cancer just over a month ago, he was given 3-6 months to live, his cancer is fast progressing , this has spread to his lymph nodes and bones. He's recently started with seizures and the ct scan shown no large masses around the brain but said they is small particles they said due to dad's diagnosis they don't want to put him through painful prosidures to find if these are cancer cells or not, 

Dad keeps telling me he don't want to die and is going to fight this , 

Sadly we know he can't fight this but I don't understand why he can't have chemotherapy or radiotherapy,  would having this not have helped him live longer or even killed off most of the cancer cells ? 

I'm scared seeing my dad so poorly and weak, he's lost dramatic amount of weigh , he has so many symptoms,  I find myself looking at rhe clock and hate how fast it's ticking,  

I don't understand how someone who wants to fight can't have treatment , they said he's too weak and his weight is a huge issue , 

I'm scared and don't know how to answer his questions , 

  • Hello Reen and thanks for your post,

    I am sorry to hear about your situation. This must be a very difficult time for your family.

    I can also understand how painful it is to ask the questions that you want to ask.

    It is really important that you do have these questions answered even if it is for peace of mind. Your dad might have a lung cancer nurse or a palliative care nurse who can talk to you and your dad.

    I am sure that if the doctors felt that your dad would benefit from treatment such as chemotherapy or radiotherapy they would consider offering it to him.

    In deciding whether to treat a patient the doctors need to decide how a patient would cope with any treatment and how safe it would be to give a patient treatment.

    The kidneys and liver need to be working well. As a patient gets older and when they have cancer these often don't work so well. Chemotherapy can come with very toxic side effects and a patient needs to be well enough to receive them. 

    Doctors have sometimes got to make a judgement as to what is in a patient's best interest. It may be helpful for you to try and be with your dad at his next appointment so you are hearing the information at the same time.

    I do hope that you are getting support from friend's and family if you would like to talk any of this through with one of the nurses on the help line you are welcome to give us a ring. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    All the best,

    Catherine

  • He has diabetes,  history of gangrene and had toes amputated 2 years ago has urine amd stole incontinence,  his medical background isn't very clear as he has moved about etc but I do know the cancer is in lymph nodes and bones now , 

    We are waiting on doctors to see him regards to pain management , he had a dermatology appointment yesterday , due to fungal infections in remaining toes and feet, 

    He is currently in a nursing home , but not long been in there so they are not 100% what his case file is yet so do t really know who to speak to regarding his care etc , 

    Thank you for explaining the chemo option now you said that I can understand why he can't have it, heartbreaking is an understatement but I do understand, 

  • Hi Reen, thank you for explaining your dad's situation further.

    It sounds like your dad has a lot going on with his health and I can appreciate this is difficult for you all.

    I was unsure what doctors your dad is waiting to see to help manage the pain whether it is the team at the hospital or his GP. I wondered if he also had the palliative care team involved in his care. The reason I say this is they are specialised in managing symptoms such as pain and are also good support for the family.

    I don't know if is possible for you to talk to the staff in the care home to see if you can speak with the GP who is in charge of his care and find out how they plan to manage his future care. You can also ask if your dad can be referred to the community palliative care team to help manage his symptoms.

    Take care Reen, do come back to us again if you need to.

    All the best

    Jemma

  • I'm with dad now and I'm on my way to speak to the nurse at the care home I will ask everything you suggested,  thank you , I will do and try anything to get him help , xx

  • Offline in reply to Reen

    I spoken to the nurse they did as you suggested and he's now on morphine along with his normal pain medication, 

    He is having more and more seizures now amd when he comes around he's holding me crying saying his mum is here and scaring him , he saying she is talking to him but it's mumbled and he can't understand her, he said its like she's calling for him but he don't want to go , she's scaring him, I do t know what to say to him I asked the nurse but she said try talk calmly to him amd reasure him he's safe and he's still with us , 

    Is this a sign of things to come is this a sign it could be coming to hos end. I really don't know what to expect or what to do or say to him , 

  • Hi Reen and thank you for your further post,

    I am sorry to learn that your dad's condition has deteriorated and it sounds like he is now having hallucinations which I imagine is distressing for you.

    I can understand it is difficult to know what to say. It may not feel like it, but the fact you are there for your dad will mean a lot. When seeing loved ones like this it is hard and family and friends can sometimes feel helpless in this situation. As the nurse says just being calm when talking to him will help.

    Not being involved in your dad's care I cannot say if this is a sign that things are coming to an end. It might be worth checking with the nurses if they think the hallucinations are being caused by his condition or possibly by the medication. You can also ask them, how much they feel he is deteriorating.

    There is information on the NHS website about the changes in the last days and hours of life, which you may find helpful.

    Take care Reen, please feel free to get back to us if you need any more information or support. 

    Jemma