I'm scared - high risk of breast cancer.

I know I'm jumping the gun, but I'm worried and scared. I've just found out I'm very high risk of developing breast cancer. I had Leukaemia a number of years ago and the thought of going through all that again is terrifying me. Due to family problems, I've only just found out about the medical/ family history of my dad's side of the family. It turns out my DNA I'm 50% Ashkenazi Jewish and both my Grandmother and great aunt died of breast cancer. I also have been on HRT for the past 30 years (didn't know I had a risk). I'm now so scared and haven't a clue what will happen going forwards and how long it might take. My Grandma apparently got breast cancer first in her mid to late 50's and I turn 53 next month. 

How long does gene screening take to happen on the NHS and should I empty my savings and have the test done privately. I feel like I'm sitting on a time bomb about to explode. 

  • Hi. I have 56% Ashkenazi jewish family history according to my 23&me test. No BRCA mutation. My blood test took 3 weeks on NHS. Don't worry. Get the test done and give yourself piece of mind. 

  • RedRuth84 thank you for your reply and helpful information. It's good to know there can be a quick turn around on results , even on the NHS. 

  • Thank you for your enquiry.

    When cancer is in the family, people often assume that this greatly increases their risk of developing it, but this isn't always true. Although the genes we inherit may influence our risk, other things do as well. No one is risk-free and the risk of breast cancer increases for all women as we get older.

    Breast cancer risks and causes are explained on our website. You will see that a family history can increase the risk of breast cancer but not necessarily by very much. This can depend on how close the affected relatives were and how young they were when they developed the cancer. Breast cancer is common anyway, 1 in 7 women develop breast cancer over their lifetime, but mostly at an older age (above 50).

    We all carry some degree of ‘population' risk. In the UK, routine breast screening starts from 50 for most of us although there is a study asking some women from the age of 47. Some women whose risk is above average can start screening sooner, but this would depend on the situation. 

    The first step is to find out if your breast cancer risk is enough above average to justify genetic testing and screening. Your GP can help you to do this. Let them know about your family history of breast or other cancers and if so, how old they were when they developed it. Depending on the family history your GP can refer you to a breast clinic for a risk assessment or a family genetic cancer clinic. I am afraid I don't know how long that would take, but your GP may know.

    It is worth reading the National Institute for Health and Care Excellence (NICE) guidance for women with breast cancer in the family

    Please do get back to us if you have any more questions or give us a call on 0808 800 4040. We are here from Monday to Friday, 9am to 5pm.

    Best wishes,

    Caroline