Refractory B cell lymphoma spread lymphatic sustem

Been told that b cell lymphoma has spread in lymphatic system (throughout) had cat y cell therapy, radiotherapy and numerous chemotherapy but now all deflated and not sure what this means…I know it’s incurable but now wondering is there any point? Nothing has worked at keeping it at bay for longer than 2 months, is anything else they are going to offer likely to or is there just no way of knowing?

Parents
  • Hello and thank you for contacting us. 

    I am sorry that your B-cell lymphoma cancer has come back despite treatment, This will be a difficult time for you.

    Unfortunately, as I am not a doctor I do not know what treatments they may suggest or offer next. They will be discussing you further at an MDT (multidisciplinary team meeting) and then decide on a plan.

    You must talk through with them how you are feeling about the treatment, and whether it is worth it. The doctors will discuss with you potential side effects and quality of life so you see the risks versus the benefits of further treatment.

    I am sorry I am unable to answer your question more specifically but do also read through our pages on b cell lymphoma, as different treatments are talked through on those pages.

    Take care and if you want to talk anything through with one of the nurses on our helpline the number is Freephone 0808 800 4040. The lines are open from 9 am till 5 pm, Monday to Friday.

    Sarah.

Reply
  • Hello and thank you for contacting us. 

    I am sorry that your B-cell lymphoma cancer has come back despite treatment, This will be a difficult time for you.

    Unfortunately, as I am not a doctor I do not know what treatments they may suggest or offer next. They will be discussing you further at an MDT (multidisciplinary team meeting) and then decide on a plan.

    You must talk through with them how you are feeling about the treatment, and whether it is worth it. The doctors will discuss with you potential side effects and quality of life so you see the risks versus the benefits of further treatment.

    I am sorry I am unable to answer your question more specifically but do also read through our pages on b cell lymphoma, as different treatments are talked through on those pages.

    Take care and if you want to talk anything through with one of the nurses on our helpline the number is Freephone 0808 800 4040. The lines are open from 9 am till 5 pm, Monday to Friday.

    Sarah.

Children
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