Bladder cancer

My mum was diagnosed with BC in Feb of this year. Micropapillary sub-type. She underwent radical cystectomy soon after diagnosis however were advised that the cancer was considered locally advanced and found to be in adjacent organs womb, cervix , ovaries and vagina.

Despite he surgeon advising the operation was considered successful and has prolonged her life she has been referred to oncology for the possibility of adjuvant chemo. Whilst I understand cancer cells can be microscopic and unseen I am confused with terminology. They successfully removed all the cancer that they could see what does this mean in terms of longer term prognosis?

Language like 50/50 have been advised but everything I read about this sub type fills me with little hope. I can’t speak to my Mum about this as her mental health has always been very difficult and the cancer diagnosis has escalated matters to what seems like an unbearable level on some days. 

Since surgery (April) she has experienced some bowel issues but I live worrying that any pain she may be experiencing post surgery as part of the internal healing process and overall recovery are a sign of her cancer returning particularly as there is so much confusion for me about this cancer variant , especially as from my reading it’s relatively rare. 

I have suggested counselling but my mother refuses it’s almost as if , if she ignores it, it will go away. 

I have made attempts to contact her MTD and have been sign posted to McMillan sites, again however there is little specific info on how we move forward in particular around this variant. Finally it is accepted that each individual patient is unique but I find myself turning to this forum for the sake of my own mental health to be in a more informed position moving forward.

  • Hello JCitsme and thanks for your post,

    I am sorry to hear about your mum and I can understand what a difficult time this must be for you all.

    It is difficult to give you predictions in terms of prognosis (outlook) but it sounds like the doctors have removed all the cancer that they have seen and any chemotherapy is to help mop up any isolated cells that may have escaped that are sometimes too small to be seen by a scan. We have more information on our website about chemotherapy for bladder cancer.

    We do have some information on survival of bladder cancer which you might find helpful to read. This does not take in to account the type of bladder cancer that she has and is a question best answered by her specialists

    The oncologist will take in to account your mum's general health and how she would cope with any treatment. They will assess how well her kidneys and liver are working in establishing whether chemotherapy would be in her best interests. You may find it helpful to attend the appointment with your mum so you have the chance to ask questions.

    Your mum sounds like she has had quite extensive surgery and this may well be the reason for the bowel problems that she is complaining of. When she sees the oncologist they may want to do a scan before they consider giving her chemotherapy.

    If your mum has a specialist bladder nurse then do talk through your concerns with them. If you can get your mum's permission then you could also try emailing the consultant about your mum's well-being. You could also try and get your mum to see her GP so she is able to talk through her concerns with them.

    I can understand that counselling is not something that everyone feels that they can benefit from. She may be interested to hear that Macmillan do offer 4 free counselling sessions organised through BUPA. You can see the information about counselling here.

    If chemotherapy was an option your mum could always try it to see how she gets on with it and then stop it if she is finding it difficult to cope with.

    I can understand how draining this must be for you and I hope that you are managing to get some support for yourself.

    If you would like to talk about any of this with one of the nurses on the helpline then you are welcome to give us a ring.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Take care,

    Catherine