New diagnosis of aggressive bladder cancer. What can we expect?


I had blood in my pee a couple of weeks ago. Ended up in pain and went to hospital. Got admitted and a week later had a TURP. Today been told I have aggressive bladder cancer and will be starting chemotherapy before a cystectomy.

How worried should I be? I am quitting smoking and will be changing my lifestyle but a big shock at 54 years old. Obviously my family are in bits and we just don’t know what to expect. Have no experience of chemotherapy so that is a huge mystery to us all.

Many thanks

  • Hello and thank you for posting. I am sorry to hear about your diagnosis of bladder cancer and I understand this is a big shock for you and your family.

    At first, there is so much for you all to process, but the support is out there whether it is this forum, written information on the website, or the helpline. Your hospital trust may also have a cancer support network with a Macmillan or Maggie's centre onsiteThe cancer care map also lists local support services.

    I have provided some links for you and your family to read when you are ready. As you get more information about your situation, or if you read anything you want to go through, then please do give our helpline a call. You can also write down questions so that when you go into your next appointment you have questions ready to ask your hospital team or specialist nurse (CNS)

    These are our pages on chemotherapy for bladder cancer and cystectomy and the bladder cancer charity Fight Bladder Cancer also has information if helpful.

    Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9 am till 5 pm, Monday to Friday.

    Take care,