Axillary lymph node clearance

Hi there, I was diagnosed with ER and PR positive invasive ductal carcinoma on 10.5.24. Had lumpectomy very close to my left nipple on 13.6.24 as well as sentinel node removal.

Results today could not have been worse. Sentinel node is positive for cancer. More cancerous cells were found under nipple. Lump on removal was 2.2cm and grade 2.

A mastectomy or lateral excision required (my choice) on 25.7.24 as well as all lymph nodes removed. 6 months of chemo and 5 days of radiotherapy, chemo to start ‘towards the end of sept’.

my concern/question is the time scales here, it is currently spreading around my body? What if all lymph nodes are positive when they remove them? I would not find this out for another 5-6 weeks from today.  Chemo to start in 10-12 weeks is a long time for it to be spreading? Should I consider going private? Not that I can afford to but I would know sooner? Would this mean NHS would still do chemo or would I still have to wait that long?

Should I be worried as to why they are removing all lymph nodes instead of doing a biopsy on them? 

I am normally quite mentally strong but this has floored me. I will speak to my cancer nurse/s tomorrow also but would appreciate your thoughts also. Maybe I could get a full body MRI privately now, to see if there is cancer anywhere else? I feel healthy apart from my recent lumpectomy/sentinel node areas.

why do o need both chemo and radiotherapy if I choose a full mastectomy? Il

am I right in saying if I have a full mastectomy the cancer cannot come back to that area?

Claire x

  • Hi Claire,
    Not a medic, just an ex-patient, but appreciate that you want detailed answers to your questions. I was the same.
    I am certain they would never delay chemo for 10-12 weeks if they thought the delay might jeopardize your survival. Your medical teams are experts. And they want you to be cured.
    My non-expert understanding is that a biopsy is never a substitute, in terms of accuracy, for a full pathological examination of the lymph node. But the medical team works very hard to balance the morbidity risks, associated with lymph node removal, with the reduced side effects, but also reduced accuracy, of a biopsy. 
    I was terrified when I was waiting for my sentinal node procedure results. I knew in advance that a positive result would have meant  a removal of all lymph nodes in the groin. But I had read up on it, and knew it would have been the right thing to do. Fortunately for me, I got lucky. My sentinal nodes were fine.
    Really sorry your results were not great. I wish you the very best, Claire.
    x Harry

  • Hello and thank you for your post.

    I am sorry to hear about your diagnosis and I can appreciate that this must be a difficult time for you.

    Hopefully, you have spoken with your breast care nurse and have a better understanding of what is happening. I hope the following information will help too.

    Sometimes after breast surgery, once it has been checked, more cancer is seen.  So to be sure that all the cancer is removed more surgery is needed. To mop up any cancer cells that may be left, and to reduce the risk of the cancer coming back, treatment is needed after surgery; radiotherapy is given to the local area (where the cancer was) and chemotherapy is given into the blood to go all over the body.

    Radiotherapy or surgery is used to remove the lymph nodes if one or more have cancer in them.  Doing this reduces the risk of the cancer spreading.

    I am afraid that I do not know if having a mastectomy may mean you do not have radiotherapy to your breast, because that will depend on exactly where the cancer is found in your breast and lymph nodes and the risk of cancer coming back.  You will have to ask if having one is the best option for you.

    You may need to have a CT and or MRI scan to see if the cancer has spread but I am not sure about that so do ask.

    It might help if you read our information about how breast cancer treatment decisions are made.

    I realise that waiting to start this treatment is a worry.  But if you have further surgery that area needs to start to heal before other treatments are given. Therefore,  I am not sure that even if you went privately it would be done much sooner. 

    I hope you have support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9 am till 5 pm, Monday to Friday.

    Take care,

    Caroline

     

  • Hello Claire

    I had a lumpectomy and axillary lymph node clearance on 8th May. I start radiotherapy on July 8th which is almost 9 weeks post surgery. The reason given was that I should wait for the seroma under the arm to decrease in size. Like you, I was worried that stray cells might escape and cause cancer elsewhere but I have read that  up to 12 weeks is fine so please do not worry.

    Anne  

  • Offline in reply to Harry2

    Thank you so much for your kind words and sharing your though and Experiance x