Hello,
I'm male, age 67, recently diagnosed with pre-myelofibrosis.

Bone marrow biopsy showed grade 1 fibrosis (I assume that's a one on the internationally recognised scale of zero to three). Genetic tests show I am JAK2 positive. PET scan showed mild splenomegaly. Systemic symptoms I was having (night sweats, chills, fatigue, anaemia) have largely resolved and I now feel OK. They may even have been post-covid phenomena, with the MF diagnosis being incidental, just because I was tested for so many things.

I have been looking online, including CRUK, for information. However, many reputable online sources mention "Pre-fibrotic myelofibrosis" which the World Health Organisation regards as a separate condition from myelofibrosis. Apparently one major distinction is the degree of fibrosis; 0 and 1 being "pre-fibrotic", while 2 and 3 are overt MF. The prognoses seem to be markedly different, which is why I ask...

When my haematology Consultant wrote and said "pre-MF", is it likely that's just a shorthand way of saying "pre-fibrotic MF"?

(I can't ask directly right now because having some trouble contacting them).

Many thanks for any answers!