Lung cancer returned

My mum fought lung cancer 20 years ago, and after removal of part of the lung, chemo and radiotherapy she was cleared after 5 years. 
mum is now 78years old. 
4weeks ago after a run of poor health, breathing and fatigue issues she was sent for tests from the doctor. After a blood test flagged she was severely low on red blood cells, and deficient in iron she was rushed to hospital. 
Later that day we was told the lung cancer had returned. 
we are now nearly 3 weeks into a hospital stay, with a chest drain that has been in for a week, and the fluid isn’t  going down, her breathing is still awful, and she has a lingering infection that after 2 weeks of strong IV antibiotics isn’t improving at all. 
We are getting very little information from the doctors, and they admit they don’t know why her breathing is so bad. 
is there anything I should be asking about, or any ways in which I can  try and get more information. 
I should also add that my mum has already decided she will not be having any treatment and has told the doctors this. Is this why I feel like we are getting limited information?? 
Thank you in advance. 

  • Hello and thanks for your post

    I'm sorry your mum's cancer has returned after so many years. This must be an incredible difficult time for you both.

    Unfortunately as nurses here we cannot give a medical opinion on your mum's situation as we are not directly involved in her care.

    However, I would suggest that you make an appointment to see her specialist to ask for an update on her current situation. Although they have said they are unsure why she is still having breathing issues you can ask if there are any further tests that can be done to understand her symptoms better, and how they can be managed more effectively. If your mum has access to a lung specialist nurse at the hospital then it would be a good idea to also discuss this further with them.

    Doctors and nurses are usually happy to speak to relatives provided they have the patients permission to do so.

    It's your mum's choice not to have active treatment and this will be respected. But it doesn't mean that she will not be given information and support. It also doesn't mean that nothing else can be done. Your mum can be given supportive (palliative) care, with medicines to control any symptoms. Palliative (supportive) care involves easing troublesome symptoms and aiming to improve a patients quality of life and providing emotional support to them and family members. You can read more about their role on Macmillan's website You can also read more about palliative care on the Marie Curie website.

    I hope this is of some help at this very stressful time. Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Kind regards,

    Celene