Weight loss during chemo

Hello

My husband had an esophagectomy in April 2023.

Recovery was extremely difficult.  Around early December 2023, he was just starting to make progress and feel more like his old self.

However, also in December 2023, he was told he now had a tumor in his lung, well rather in the pleural area and this is inoperable.

Chemotherapy was the only treatment option and more palliative than curative.  No cure; just the hope to prolong life.

My husband is now 69.  He was just thinking about retirement when all this began.

He has been off work on sick leave since 2023, although a short return to work on a phased return basis was tried until the lung cancer diagnosis.

He has spent almost the entire time since his major surgery in April last year in bed feeling absolutely dreadful.

We do understand the impact chemotherapy drugs have.

But despite being able to eat much better now, he is continuing to lose weight.

The chemo drugs have caused taste bud changes and he has become very picky about food. 

I try to instill in him the need for protein, iron and calories and whilst he agrees, he then gets very irritable.  He snaps at me and I feel guilty for "nagging".

I just want him to gain a little weight.

During this time he has lost a considerable amount of weight.  Starting at 16st 7lbs in April 2023 and currently at 11st 14lbs.

What can I do?  This scares me so much.

We are both too frightened to ask his oncologist too much detail.

We are both now suffering depression and anxiety.

What advice can you offer please.

Thank you

Jane

  • Hello Jane and thank you for posting.

    I am so sorry to hear about what your husband is going through and I am sure that is also incredibly painful to watch someone you love deteriorate both physically and mentally.

    A palliative care team would be an excellent resource for you both if your husband doesn't already have one. They are experts in dealing with those, similar to your husband who can not be cured. Helping to improve his quality of life when the doctors are doing what they can to give him quantity. If this is not something already in place please do contact someone in your hospital team or the GP who can refer you.

    It is difficult when appetite is affected, and the people we love are losing weight. Diet problems and issues with mental health in cancer patients are very common, so do also talk these through with your husband's team so that they can try and help you both with this.

    This  Cancer and Nutrition helpline may also be a useful resource to you.

    Support for those caregivers is essential at this time. I hope you have other friends or family Jane who help, or please do try and make these links with the palliative care team. 

    If you want to talk it through with one of the nurses on our helpline the number to call is Freephone 0808 800 4040. The lines are open from 9 am till 5 pm, Monday to Friday (not bank holidays).

    Take care,

    Sarah.