I’ve been experiencing carcinoid syndrome for 2 1/2 years and the doctors didn’t know what was going on with my body- still don’t. I was referred to heart specialists who didn’t know why my heart was beating fast and discharged me. And dermatologist saw my rashes and said potential NET or phaeoc. but that was two years ago. But I’ve just realised it’s carcinoid after reading the dermatologist letter now from two years ago. I’ve been referred to endocrinology at Cambridge but it’s been 2 weeks and still no letter? How long do you usually wait to see a doctor for suspected NET.
