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What is the percentage of people having a mastectomy and reconstruction that suffer from post op problems

Thuringa
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I have been told I have DCIS breast cancer it was early and treatable at end March 24. I was due to have a partial breast removal and then followed by radiotherapy on 2nd May. When I went in for the op the surgeon said the area had got bigger (not necessarily all cancer but possibly swelling - I had recently had another infection in it and been on antibiotics and finished them only a few days before his examination). He then recommended I should have a right breast mastectomy and reconstruction as I would be left with a very small breast and he did not think I would be happy with it. After extensive reading of all the problems associated with a mastectomy followed by reconstruction at the same time, I am very scared. What is the likely percentage of getting any of these  problems.I am a young 75 and the thought of having my breast removed and going flat is abhorrent! But I have a low pain threshold and hate needles of any kind, and reading about ongoing  nerve problems and severe pain after the operation etc is really scary. My new date is 23rd May and I see the surgeon on the 10th before the op to measure for the implant,I think. My husband and I still work part time in a self employed capacity  to cover bills etc so I must be able to work in 4/6 weeks. Will this be possible? I can try and avoid lifting heavy items as my husband can do that for me but it will involve packing and unpacking. I am really nervous about the after problems and wonder how many people get away without too many. It all seems so negative. Except the bit  that you wake up with at least some sort of boob! I need some positives if I am to go through this traumatic experience and come out the other side still feeling ok. 
I have already had a hip and two knee operations over the past four years - the last knee only being in February this year. I have recovered from that very well, they were all done by the same excellent surgeon over that period of time so I had a lot of confidence in him. , But this operation feels so much bigger making the previous ops feel like a piece of cake!  Please give me some assurance that this will turn out well. My previous surgeon knows the breast surgeon doing my op and says he is good and will look after me. But this assurance is not enough, I need more! 
Can you help? 

  • Hello Thuringa and thanks for your post,

    I can understand that you have so many questions whirring around in your head. 

    It is difficult to give a percentage of how many woman have complications after a mastectomy as there are so many variables. A lot will depend on your general fitness and the type of mastectomy the surgeon decides to do. The aim will be to try and get you on your feet as soon as possible. You will be given some exercises to do after the operation which will help with your general mobility.

    We do have some information on types of breast cancer surgery which you might find helpful to read. I would talk this through with your surgeon and ask him to give you a realistic time for recovery.

    It is good that you have recovered so well after your hips and knees which are also big operations.

    I am not sure whether you have been given a breast care nurse but if not you will hopefully meet them at your next meeting with the surgeon. They should help talk you through the recovery steps after the operation.

    The Royal College of Surgeons have guidelines about returning to work after a mastectomy.

    We have some tips on preparing for surgery which you might find helpful to read.

    Breast Cancer Now have produced some information on your operation and recovery which you might find helpful to read through.

    Breast Cancer Now also have a service called Someone like Me where they try and put you in touch with someone who has been through a similar operation.

    Do try and discuss your concerns with your Breast Care nurse and your surgeon so they are aware of your worries. You have posted in 'ask the nurses but if you post on a different thread or start your own you may find that you get more responses.

    I do hope that when you see the surgeon on the 10th that they are able to answer all your questions. Do make a list of what you want to ask so you have any concerns addressed. It does help taking someone along to your appointment so you can have someone listening in as well. Don't be afraid to ask questions and do get the surgeon to repeat anything if it isn't clear.

    If you would like to talk any of this through at any stage you are welcome to give the nurses a ring on the helpline. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    All the best,

    Catherine

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