Cystic Mass

Hello. Last week I was sent to A&E with severe abdominal pain. An ovarian cyst was found in 2018 and endometriosis was found after an appendectomy in 2021, so at this point they thought the pain was a gynaecological issue so I was seen in the GAU. After an abdominal ultrasound, nothing was found. I was then sent to the surgical assessment unit and eventually admitted to a ward. I then had a CT and they found a cystic mass in the right iliac fossa with adjacent sigmoid wall thickening and oedema. 

A bit of history - I was diagnosed with Ulcerative Colitis in 2000, just before my 11th birthday. In 2021 I had a planned appendectomy after a mucocele was found. Histology diagnosed a Low Grade Appendiceal Mucinous Neoplasm - it was removed with clear margins. My maternal grandmother died at 50 years old from ovarian cancer and my maternal Grandfather died from metastatic bowel cancer. My paternal grandmother and grandfather died from cervical cancer and leukaemia respectively. My mother was diagnosed with Breast cancer at 56 years old.

Before they decided on the appendectomy, my case was discussed with a team at a specialist hospital. I know this hospital, along with another in Manchester, deal with appendiceal cancers, more so pseudomyxoma peritonei and I'm very worried that this mass could be this. Given my history and that of my families, I can't help but think the worse. I have an MRI booked for the end of May but that doesn't stop me worrying and googling things. 

Any advice or information is very much appreciated.

  • Hi emme _89 and thanks for your post.

    I am sorry to learn that you have been having symptoms and a cystic mass was found on your CT scan. I can understand this is a worrying time for you.

    Unfortunately, as nurses and not being involved in your care, we cannot say what this mass may be.  I am afraid it is a case of sitting tight and waiting for your MRI scan, which will give the doctors more information. I would also advise you to try and avoid looking at Google as this will not be able to tell you what the mass is and the information can be frightening as well as heighten anxiety.

    Many people waiting for scans feel anxious, the waiting period can feel very long, and the future may feel uncertain. For some people, it can be helpful to be distracted by carrying on with their usual daily activities such as working.

    I know your family history is also causing you concern. When cancer is in the family, people often assume that this greatly increases their risk of developing it, but this isn't always true.  Although the genes we inherit may influence our risk, this might not be by very much.  Cancer is caused by a build-up of changes in our genes and/or the way our genes behave. Changes occur because of mistakes or faults which in most cases of cancer have developed over someone's lifetime and are not inherited. Faulty cancer genes can be passed from one generation to the next, but they are uncommon.

    I hope you are able to get more answers from the MRI scan and I wish you all the best.  Please feel free to get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Take care, all the best

    Jemma