Hey lovely. Sorry to hear this.  I get like a proper heavy pressure like feeling sometimes. On the whole I’ve not been too bad side effects wise. Some days are better than others which is annoying as hard to plan things as don’t know how I’m going to be feeling. 

Jolene 

im 2 years in only last few months my affects have started 

on the whole I’m ok but get days where I’m absolutely wiped 

how long you been taking them x 

yes that pressure feeling is horrible I had it this morning first time x 

I’ve been on them for 9 months now and same, some days I’m exhausted. 

I get it quite a bit and it’s uncomfortable trying to sit down etc. 

Hello and thanks for posting,

It seems that you have already had some feedback about this from other forum users, which may have been helpful.

It is difficult for us, as nurses, to comment very specifically about this. If you have an opportunity, then do ask your GP, or hospital specialist/specialist nurse, about it, to see what they say.

I am sorry that we cannot be of more specific help. 

Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Yours sincerely,

Vanda