Blood Cancer UK has information on CLL, and explains more about when just monitoring is done, and when treatment may be necessary.
Usually, the hospital team/hospital specialist nurse will explain what the follow up care plan is with the patient.
They also provide support via an online community which may be of interest.
I hope that this helps,
Please get back to us if you need any more information or support. You may find it helpful to talk things through with one of the nurses on our helpline. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.
