Not ill enough for hospice care

My father in law was diagnosed with secondary lunch cancer last Sunday. On Friday it was confirmed he had primary colon cancer which has spread to his liver, lungs and is in his blood stream. 
Coming home is not an option, due to immobility issues and other health care complications which my mother in law has tried her best to cope with since his stroke 8 years ago. We’ve been advised the only other option is a residential care home.

The consultant (gastric not cancer) at the hospital will not refer him to a hospice due to his symptoms ie he is not confused / agitated or needing help with his breathing yet.

Is this lack of help because of where we live (Durham) or is this the case across the country? It’s baffling that someone with weeks to live, their family now have the added pressure of trying to find a suitable care home that will deal with end of life care. 
Just trying to get a sense of support in other areas as it seems very lacking here 

  • Hello 1808 and thanks for your post,

    I am sorry to hear about your father in law. I can understand how stressful this must be for the family.

    Hospices do have a strict criteria as to who they accept. Places are limited and are usually given to patients who need help with symptom control such as  pain or  breathing concerns.

    Hospices rely on charity and as far as I am aware they are self funding. This I am afraid is not just in Durham but up and down the country.

    You may find it helpful to look at the AgeUK website.on funding for care homes. This has some useful tips which you might find helpful.

    It is hard caring for someone who is so ill especially when you are supporting another parent at home.

    I do hope that you find a solution that works for everyone.

    If you would like to ring and chat through any of this with one of the helpline nurses then you are more then welcome to do so.

    Our number is Freephone 0808 800 4040 and our helpline number is freephone 0808 800 4040.

    All the best,

    Catherine

  • Hi Catherine 

    Many thanks for your reply and explaining the situation. It’s crazy that not only do the family have to deal with the news of untreatable cancer we are being forced to decide if he comes home or goes into a care home - both options that are just not possible / acceptable in their own way. 

    Thank you for the helpline numbers. I think we’ll give that a try for further advice / info.