Lung cancer newly diagnosed

Hi, My 76 year old Mum was diagnosed yesterday with Lung Cancer (had chest X ray then CT scan last week and she has a tumour in top right hand lung and also in lymph glands, not given details of size or stage).  She has always insisted that she wouldn't have any treatment if anything was found. The Consultant said if there was no treatment her life expectancy it would be months rather than years and he would refer her to Palliative Care. I think think has scared her and  she might consider some treatment. Mum is happy to have a PET scan to see if it has spread anywhere else but doesn't want Bronchoscopy with EBUS as too invasive. Just wondering if she doesn't have the Bronchoscopy with EBUS for the biopsy can she still be offered any treatment? Also, I can see some people have been told a stage without a biopsy, is that more of a guess of what stage it could be at? Just trying to get some info so I can support her as best I can. Thank you for reading. 

Parents
  • Hi there 

    I am new to this my 78 yr old mum got what they call a clinical diagnosis of lung cancer 2 days ago. At first they said lesions now there saying mass. As she was on her own when they told her, she stated she doesn't want chemo, so they will not do a biopsy. We do not know what stage, we believe they said it is about 5 cm. They have referred her to palliative care and McMillan nurses. However we are left in limbo as they have had all these conversations with my mum when she has been on her own. When we visited never a doctor about so feel so lost at the moment. 

  • Hello 11Nicki11 and thanks for your post,

    I can understand how frustrating it must be when you don't feel that you have been involved when any decisions were made about your mum.

    As your mum is still in hospital do ask the nurses on the ward (with your mum's permission) if you can have a conversation with one of her medical team. Do also talk to your mum about what she would like. Your mum may also have a lung specialist nurse who has been involved in her care who may be able to tell you about how this decision was reached.

    In deciding what treatments to offer patients, the doctors will take in to account a patient's general health and how well someone would cope with any treatment.

    If you are unable to speak to a member of her team you could always try contacting the secretary of the consultant involved in her care to see if you can have a conversation with them.

    I do hope that you manage to speak to someone soon.

    if you would like to talk any of this through with one of the helpline nurses then you are welcome to give us a ring.

    Our number is Freephone 0808 800 4040 and we are here Monday to Friday 9 am to 5 pm.

    All the best,

    Catherine

Reply
  • Hello 11Nicki11 and thanks for your post,

    I can understand how frustrating it must be when you don't feel that you have been involved when any decisions were made about your mum.

    As your mum is still in hospital do ask the nurses on the ward (with your mum's permission) if you can have a conversation with one of her medical team. Do also talk to your mum about what she would like. Your mum may also have a lung specialist nurse who has been involved in her care who may be able to tell you about how this decision was reached.

    In deciding what treatments to offer patients, the doctors will take in to account a patient's general health and how well someone would cope with any treatment.

    If you are unable to speak to a member of her team you could always try contacting the secretary of the consultant involved in her care to see if you can have a conversation with them.

    I do hope that you manage to speak to someone soon.

    if you would like to talk any of this through with one of the helpline nurses then you are welcome to give us a ring.

    Our number is Freephone 0808 800 4040 and we are here Monday to Friday 9 am to 5 pm.

    All the best,

    Catherine

Children
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