Lung cancer newly diagnosed

Hi, My 76 year old Mum was diagnosed yesterday with Lung Cancer (had chest X ray then CT scan last week and she has a tumour in top right hand lung and also in lymph glands, not given details of size or stage).  She has always insisted that she wouldn't have any treatment if anything was found. The Consultant said if there was no treatment her life expectancy it would be months rather than years and he would refer her to Palliative Care. I think think has scared her and  she might consider some treatment. Mum is happy to have a PET scan to see if it has spread anywhere else but doesn't want Bronchoscopy with EBUS as too invasive. Just wondering if she doesn't have the Bronchoscopy with EBUS for the biopsy can she still be offered any treatment? Also, I can see some people have been told a stage without a biopsy, is that more of a guess of what stage it could be at? Just trying to get some info so I can support her as best I can. Thank you for reading. 

Parents
  • Hi there 

    I am new to this my 78 yr old mum got what they call a clinical diagnosis of lung cancer 2 days ago. At first they said lesions now there saying mass. As she was on her own when they told her, she stated she doesn't want chemo, so they will not do a biopsy. We do not know what stage, we believe they said it is about 5 cm. They have referred her to palliative care and McMillan nurses. However we are left in limbo as they have had all these conversations with my mum when she has been on her own. When we visited never a doctor about so feel so lost at the moment. 

  • How did they detect the mass? Was it though a chest x-ray, CT scan? Someone must have requested it in the first place - perhaps your mum's GP?

    The word "mass" means that the lesion is over 3cm, to my best knowledge.

    Who actually contacted your mum?

    It may be that they need to do a biopsy to decide on the most suitable treatment (eg type of chemotherapy). If your mum doesn't want chemotherapy then it may be that there wouldn't be any point in her having a biopsy.

    Perhaps the nurses can suggest a way forward? 

    I hope you can make some progress.

  • Thank you Sharxa

    She was rushed in hospital last Sunday night. With what we believed was a chest infection. 

    She has had two CT scans an x-ray and ultrasound.

    They have stated as she doesn't want chemo they will not do a biopsy.

    But it so hard to get to speak to a doctor, she is still in hospital. Oxygen levels not settled she has been on oxygen the whole time she has been in there.

    It's so hard to take it all on board when no one is actually discussing it with us.

    Thank you for your support 

  • This must be such a worrying time for you.

    I do hope that you manage to have a discussion with the doctors and get some answers. It would help if you knew the actual stage of cancer and their reason for recommending chemotherapy. It may be that surgery isn't an option or that chemotherapy is needed prior to surgery.

    Wishing you all the best.

  • Hi, I am so sorry to hear about your Mum and the worrying time you must be going through. I was luckily that I was at the outpatient's appointment with my Mum and was able to write down some of the information she was told. Although we wasn't told that she was on the two-week urgent referral pathway, what the appointment was for or what type of Consultant she would be seeing. At the appointment she was given information about tests and who to contact but nothing about Lung Cancer itself. Mum doesn't have access to the internet so can't look for information like I can. Now I have so many questions as I feel we wasn't given enough information at the time (and it was a shock I just couldn't think of any at the time) so my Mum is going to ring the team to give her consent that I can ask some questions. This is a very distressing time for family members as it is but I feel when we are not given enough or in your case any information it causes unnecessary stress and pain for us.  I hope that you manage to speak to the Doctors and hope that you are given some answers. Take care and wishing you all the best. 

Reply
  • Hi, I am so sorry to hear about your Mum and the worrying time you must be going through. I was luckily that I was at the outpatient's appointment with my Mum and was able to write down some of the information she was told. Although we wasn't told that she was on the two-week urgent referral pathway, what the appointment was for or what type of Consultant she would be seeing. At the appointment she was given information about tests and who to contact but nothing about Lung Cancer itself. Mum doesn't have access to the internet so can't look for information like I can. Now I have so many questions as I feel we wasn't given enough information at the time (and it was a shock I just couldn't think of any at the time) so my Mum is going to ring the team to give her consent that I can ask some questions. This is a very distressing time for family members as it is but I feel when we are not given enough or in your case any information it causes unnecessary stress and pain for us.  I hope that you manage to speak to the Doctors and hope that you are given some answers. Take care and wishing you all the best. 

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