I had a biopsy for a large tumour which came back as "a high grade endometriosis carcinoma" with hormone positivity.
It was removed last month and now confirmed to be ovarian in origin. They now believe it to be low grade - I'm confused by this as it was high grade after the biopsy in January? The surgeon was surprised too because of how quickly it had grown too.
There is a discussion about chemo but the oncologist doesn't think, unless it has spread, it is worth doing. Although it had not gone into any other organ, it had grown into the abdomen (although the ovary was higher than it normally is anyway) and was pushing against other organs - I have a scar all the way down from the breastbone.
So my questions are:
1. Is it common not have to chemo after this?
2. Why has it gone from being deemed high grade to low grade?
3. Does "spread" only mean if it has invaded other organs then? Because when it was initially found it was already 15x15cm and by surgery, it had grown even more.
4. If I don't opt for chemo/oncologist chooses not to go down that path etc or, even after chemo, is it usual to have other treatment - eg medication in the medium-long term etc.