Hi

I had a very large craniectomy to remove a skull and brain metastasis 18 months ago - the size of a medium egg.  I am now missing 1/3 of my skull and there is a herniation which goes up and down in size. 

The rim of the craniectomy has always been tender but has got worse recently.  I have been trying to do the recommended 5 days x 1/2 hour cardio and strength exercise and am finding that this seems to be triggering high neck pain and one sided headache and visual disturbance (aura), like I used to get before my craniectomy.  I am only doing low impact, low to moderate intensity cardio and strength training in a gymn.  I am on TSH suppression with high dose levothyroxine. I have not noticed any particular change in size of my parenchymal herniation following exercise or when the migraine starts several hours after exercise.

1) Should I be worried about another metastasis forming?

2) Should I just change what I am doing in the gymn?  Or start some other form of exercise such as Nordic walking?   Also could the length of my hair be pulling on the rim?  Any advice or thoughts would be much appreciated.  Thank you.

3) I was left with a lateral venous sinus thrombosis following this operation - should I be concerned about another clot?

Any help or advice would be very much appreciated.  I don't want to go to the GP as I don't want to give the oncologists further reason to discontinue my therapy or move me onto molecular therapy sooner than I am ready to.