Fourth Line Treatment....life expectations of time and quality.

Hi

After having been through kidney cancer and a "successful" operation, my mother's cancer reappeared in her lung four years ago. Two attempts with targeted drugs did dramatically reduce growth. A third line of immunotherapy knocked her sideways combined with other health issues, but growth was minimal. Due to side affects she only had that first infusion and no other treatment for 16 months - oncologist led obviously - but growth was slow. More recent growth has been quicker, so in the last appointment, there was discussion of a fourth line of treatment.

"You can have treatment, it may not work, the side effects could severely lower quality of life. We could try immunotherapy again (laughs). It could lower your quality of life but only extend for a few months" and so on.... No straight answers. No prognosis with or without treatment.

With such an airy and sometimes contradictory approach, how can someone decide to make such a decision as to continue treatment or stop  - and get left in the wilderness without any support? I understand how difficult it is to predict, but for a professional, involved in cancer and growth on a daily basis, there must be some ball park on life expectancy one could discuss ? Or someone who can help with such a decision - to go with the fourth line of treatment or not.

Both feeling lost.

Parents
  • Hi Flint,

    I’m sorry the professionals have left you floundering.
    Only your Mum can decide, but she will need help in making an informed decision.
    Age, fitness and co-morbidities all have an influence on quality of life years remaining.

    In your Mum’s situation, I’d be tempted to ask the oncologist “in my position, would you opt for further treatment or simply enjoy the time I have left?”
    She’s more likely to get a straight answer that way than by asking “what do you recommend?”

    I have every empathy, I’ve been there with my Mam’s cancer care and I came very close to it with my own. 


    Best wishes to you both
    Dave

  • Hi Dave

    Many thanks for your response. You've certainly been through it - on both sides - and so glad you are still available to help and advise.

    I'm afraid it is a case of reading between the lines with the oncologist but the specialist nurse we have spoken to today has been absolutely fantastic - as she always has been. Things have been made a lot clearer and my Mum is moving towards that decision. Still no idea of longevity, but will take each day at a time, as they say, and try to make the best of each.

    All the best to you and thanks again for advice

    Flint

Reply
  • Hi Dave

    Many thanks for your response. You've certainly been through it - on both sides - and so glad you are still available to help and advise.

    I'm afraid it is a case of reading between the lines with the oncologist but the specialist nurse we have spoken to today has been absolutely fantastic - as she always has been. Things have been made a lot clearer and my Mum is moving towards that decision. Still no idea of longevity, but will take each day at a time, as they say, and try to make the best of each.

    All the best to you and thanks again for advice

    Flint

Children
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