Hi. I just have a query on behalf of my mum. She has had a rocky ten months. Diagnosed with HPV in oesphagus and mouth. Prescribed antivirals. Did not help. The. Had some facial cancer which was removed. Has had about eight endoscopies and twenty biopsies since then, told she had high grade squamous dysplasia. Has lost a lot of weight, can’t eat, swallow or really drink anything. In January had an endoscopy and told she had cancer so was due to have an operation last month. Had a GA and told they couldn’t operate as there were extensive changes and no good tissue. She had an appointment today and was told it is now not cancer and it is the high grade S D. She was very upset, and very confused, as the pain and difficulties are still there. She has been told there is just a 1 in 8 chance of it developing into cancer. Options are endoscopy every three to six months to check or no routine tests and see if symptoms develop…….
I am just not sure what to suggest to her. I have encouraged sleeping tablet and the nutritional supplements which she now has prescribed. Still a struggle to get down. What is the long term prognosis? She is 84 so I am guessing they don’t want to operate. From what I have read, it does progress to cancer. Also, if it has become extensive in three weeks, that is not a good sign.
I appreciate you can’t comment too much on an individual case without knowing full details….but I just hoped that you have some advice I can share with her.
she does have a helpful GI specialist nurse and has been allocated a dietician who she has not seen yet.
Thank you for any advice