Hi there,

My name is Jodie, I’m a 23 year old female who has had urinary difficulty for the last 2.5 years. I had 6 weeks of persistent vaginal bleeding in June 2023. I waited 8 months for an ultrasound scan to be told I have a 10cm cyst inbetween my ovaries and small cysts inside my ovaries. I have had pelvic pain during and after intercourse for well over 1.5 years. I went to 3 GP Out Of Hours appointment to be told it’s not a UTI or pregnancy- so it must be my period or stress- I have blood in my urine even when I didn’t have vaginal bleeding.

I had my CA125 blood test done at the hospital 2.5 weeks ago as it is impossible to take bloods out of my arm. The GP still hasn’t received the test results! My GP has made an urgent 2 week referral to a hospital trust that has a “higher than average” wait on their website. I still haven’t heard anything. 

I am extremely anxious and just want the investigations to start! 
My GP stated that one of my blood tests are low and could indicate PCOS. She stated “You could have PCOS but not the actual syndrome” what does this mean! The lady who had done my ultra scan was very flippant when she informed me of my abnormally large and suspicious cyst and it is pressing on my bladder which explains the issues that I have been having. The GP looked at my scan and said “it’s not pressing on the bladder.” So why am I having bladder issues for nearly 2.5 years!

I am extremely stressed and I am getting no answers! I start a new job in the NHS next month and I don’t know what to tell them yet regarding my health! 

what do I do with this referral as I haven’t heard anything at all!!!