Bile Duct Cancer

Hi 

I was diagnosed with bile duct cancer December 2022, I went through a major operation in June 2023, which was unsucessful, the cancer had spread into my liver and pancreas.

Completed my first course of chemo, which ended Jan 2024 and the cancer has shrunk partially.  I have ask if I would qualify for Durvalumab, but was informed by the oncologist, it was very expensive and it must be administered with the first course of chemo.  The wife and I were very dissapointed by this answer, because people in their mid seventies were receiving this drug during my sessions, I am only 52 years old and this makes no sense.

Can someone please give me some advise, how can I be refused a revolutionary treatment due to cost and red tape.

Any help will be appreciated.

Parents
  • I am I'm the same position as you although my oncologist has put forward for me to have it. Not heard an answer yet, but its for a 2nd round of chemo which seems strange? He doesn't think I will get it anyway because of the cost. Its not licenced to the NHS yet which means it has to be bought out of the hospital budget. That's my understanding of it. 57 by the way.

Reply
  • I am I'm the same position as you although my oncologist has put forward for me to have it. Not heard an answer yet, but its for a 2nd round of chemo which seems strange? He doesn't think I will get it anyway because of the cost. Its not licenced to the NHS yet which means it has to be bought out of the hospital budget. That's my understanding of it. 57 by the way.

Children
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