Hi, I feel lost. Went Friday for oncology review after 1st of 6 paclitaxel/carboplatin infusion. Had hysterectomy with bilateral salpingo om. 22/12. Biopsies confirmed it had not spread to lymph nodes and peritoneum but had to my omentum, and was found in both fallopian tubes and ovaries, cervix, endometrial layer and uterous. All had HGSOC, fallopian tube origin believed. I know there is a high recurrence rate in a short period of time expected, as it is fast growing and aggressive bur was not prepared for it this quickly after total removal of everything. A cat scan and ca125 combined (now 21, was 53) revealed I had at least 2 tumour markers, noted on the scar tissue from surgery. As it grows as lesions, without going in they can't be any more accurate. I was not prepared for this news, and went aline, my husband struggled parking so now feel I have questions. Wondered if you could help or if I should speak again with my oncologist. Can I find out where they are growing, what organs may be near, if further surgery may be required after chemotherapy finishes, or if immunotherapy may be ready for after this and possibly radiotherapy? Not sure what to expect and feel scared, I know there has been little advancement for a long time with HGSC and at stage 3B, internet mentions odds of 17% over 5 years so not great. I am young at 49 for this, by 20+ years and was also beleived pre-menopausal. I am between 2 hospitals for specialists in surgery and different therapies.
I am now scared but continuing with chemo Friday at highest dose, and will continue this, as long as I an cope and my body tolerates it. Just hoping you could help me with what to expect to happen or what I should do to find this out. Thank you in advance x