Breast cancer after mastectomy?

I had a preventative double mastectomy in late 2017 after I found out I had brca2 gene. They removed all internal breast tissue from both breasts and kept my nipples. I had reconstruction at the same time with implants which failed due to necrosis of the skin, so I had to have the implants removed and lost one of the nipples.

I now have a pink/red small circular patch of skin with a red 'blood' spot in the middle close to my remaining nipple. It's not on the nipple but on the skin. It is dry and scaly. I've had it for at least a year and to be honest I never really thought much of it because I've had the preventative surgery already.

I'm just wondering what are the chances of getting breast cancer after a mastectomy? And does this sound like something I should be concerned about?

My sister died 2 months ago from breast cancer that spread to her brain, which could have been prevented if she wasn't too scared to get the genetics blood test, so this has made me more cautious 

Parents
  • Hello and thank you for your post,

    It sounds like you have been through a lot with the surgery you had done and I was sorry to read the sad news that your sister died from breast cancer.

    Having risk-reducing surgery for breast cancer such as a double mastectomy can reduce your risk of breast cancer by 90 - 95%. It cannot remove the risk completely because it is not possible to remove all the breast tissue during the surgery. So it is good to still keep checking yourself regularly.

    You may have seen this previously Breast Cancer Care Now has this information in their booklet about family history of breast cancer and how to manage it on their website which you can download.

    Although I think the symptoms you are experiencing are unlikely to be caused by cancer, it is best to be safe and get yourself checked by your GP, so do make an appointment when you can.

    I hope this helps a little. Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Take care, all the best

    Jemma

  • Thank you. 

    I also found a lump just after I posted my first message. 

    I saw my GP yesterday and have been referred to the breast clinic urgently 

Reply Children