When will i feel like the new normal

Hi I'm new to this website i was diagnosed bowel cancer (mid transverse) in August 2023 i was then 64yrs old. I had operation in October 2023, 2 days later had massive bleed had an emergency operation to revise anastomosis since then i still have diarrhea and on a low residue diet cant see a doctor only over the phone and i never can speak to the cancer nurse will i be like this forever

  • Hello ck,

                    things will improve over time but you have to accept that your bowel has to start out all over again and figure out how it works in the future. Since everyone is different it is impossible to give you a time frame, the only truism is that if you stress yourself over this, you will make matters worse. The sooner you accept the answer will be "as long as it takes" and work out ways and routines to mitigate day to day issues the easier it will become.

    In my case l was stage 4 colon cancer with spread to the liver,. Bowel resection with rebuilt pouch,60% liver removed along with gallbladder, It has been an eight year journey since my stoma reversal and l liken it to starting out as a baby and gradually learning to control my bowel as opposed to it controlling you. As well as learning this, l also finally in my life learnt patience. This is a pre-requisite for any recovering bowel surgery patient, take comfort in knowledge that your current discomfort is an affirmation of your second chance of life and embrace it with a positive outlook. l am now 72, look 60, work like a horse everyday looking after cattle and sheep on my small farm, it was a hellish journey but having them depending upon me pulled me through the worst times. And that is the final recommendation, find a compelling purpose to focus upon and go for it,

                 Good luck,

                                       david

  • Hello Ck_ and thanks for posting

    I am sorry to hear about your situation and appreciate how you are wanting to get your life back as best you can.

    Unfortunately many patients who have undergone bowel cancer surgery do have a change in bowel habit for a while after treatment. Usually this is temporary that resolves with time but sometimes this can go on for longer.

    There is more information about this here.

    It can be very difficult for patients when they experience continuous diarrhoea and it does sound like you are doing the right thing in eating a low ( fibre) residual diet. Taking loperamide and other medication to try and ease diarrhoea can be helpful when trying to get out and about but of course isn't ideal in the long term.

    I understand it can be difficult to get hold of doctors and nurses but do persist in trying to speak with one your team. They will be able to assess you to make sure nothing else is going on and can provide further advice on how to best manage your bowels.

    Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Best wishes,

    Naomi