How long should you be kept waiting for treatment

I was diagnosed in 2022 with stage 1 rectal cancer and had radiotherapy. I found out on the 10th of January 2024 that they had found something on a routine scan. I was told it was an extra mural vascular invasion in the mesorectal. After having a PET scan my local hospital told me that it is out of there speciality and they had referred me to Clatterbridge hospital Liverpool. I have been waiting weeks to find out what it's going to happen, and I'm obviously very anxious. They had mentioned an operation but I have no treatment plan. How long should I have to wait considering its my second diagnosis in less than 2 years. I just feel like I'm being passed from one hospital to another. 

Parents
  • Hi Amay,

    I live in the same area. In mid-December my wife was recently referred from our local hospital to a (non-cancer) specialist centre. Last week I rang the centre to ask why she hadn’t yet received an appointment. 

    After chasing from one department to the next, it turned out that no referral had been received. The appointments clerk at the centre said “this happens all the time with that particular hospital”. 

    I asked our GP to chase it up and the practice manager discovered that a junior doctor at the local hospital had phoned the centre but hadn’t realised he also needed to make written/online referral. You couldn’t make this up!

    Eight week’s later, her GP raised a referral and we’re still waiting for an appointment.

    It would be worth ringing the Clatterbridge appointments team to double check that they have received a referral for you. If they haven’t, your GP or local hospital will need to raise one.


    Good luck!
    Dave

Reply
  • Hi Amay,

    I live in the same area. In mid-December my wife was recently referred from our local hospital to a (non-cancer) specialist centre. Last week I rang the centre to ask why she hadn’t yet received an appointment. 

    After chasing from one department to the next, it turned out that no referral had been received. The appointments clerk at the centre said “this happens all the time with that particular hospital”. 

    I asked our GP to chase it up and the practice manager discovered that a junior doctor at the local hospital had phoned the centre but hadn’t realised he also needed to make written/online referral. You couldn’t make this up!

    Eight week’s later, her GP raised a referral and we’re still waiting for an appointment.

    It would be worth ringing the Clatterbridge appointments team to double check that they have received a referral for you. If they haven’t, your GP or local hospital will need to raise one.


    Good luck!
    Dave

Children
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