Hello,
I am a 57 year old man, weight of 14 stone. Low alcohol intake and not on any blood thinners. Gallbladder removed 4 years ago and a TURP carried out on my prostate. All procedures relatively unremarkable. 2 x Urosepsis episodes.
i dont think I am being taken seriously by GP and hospital for what are very concerning symptoms to me, which are:
- Black stools that contain dark blood, and which are covered in thick dark jelly and blood
- After doing a No2 along with the above is am in intense pain across my abdomen.
- Nausea
- Fatigue
- Urine doesn't look too good either.
So I was initially referred under the 28 day rule due to passing blood in my stool. They did a Colonoscopy and afterwards they told me told me there is no tumour in my bowel- to which I replied "OK, so where is the blood coming from?" He said its likely coming from higher up in the GI Tract such as small intestine, stomach, Oesophagus, Pancreas or Liver.
However, he then took me off the 28 day rule and told me that I will be seen in outpatients, with whom I am told have no availability for 9 months. I just believe that was wrong, because surely it should be to carry out ALL investigations until they get to a point where they have identified the cause. I believe the reason why he did this was to enable that team to hit any KPI 's that they are being measured against.
My symptoms are getting much worse now with black pebble stools and more and more blood clearly visible and are covered in thick dark jelly mixed with blood followd by heavy nausea.
On Sunday night and Monday night I felt sick and in so much pain across my abdomen after doing a No 2 that I was too scared to go to sleep.
This really concerns me.. I get the feeling from my GP that she doesn't take me seriously - she just refers to her blood results where she tells me my Haemoglobin levels are in range, but what concerns me is that she just doesn't have the experience to understand that at he time they took my bloods they may well have been within range but there are other factors she surely needs to push for, things like Normocytic Anaemia etc etc
I need to push them harder as I feel like I am a ticking time bomb with the drip, drip of blood and then bang and find myself in an emergency situation. Also, this is my life we are talking about here, and through any lack of urgency, it could well be that I end up in a stage 4 scenario.
I welcome your thoughts and advice on how I might be able to push for them to explore other areas within the upper GI Tract. You see, my mother died when I was 17 and she was also told there was nothing wrong with her. She died 6 months later of Cervical Cancer. So it's ingrained in me to just not take what I am being told at face value.
Best regards
Darren