Stage 1 melanoma

Just been diagnosed 

Not really sure of way forward 

Can I still donate platelets as not having Chemo or radiation 

Parents
  • Hi Ged,

    I'm not a nurse but I have been a melanoma patient for many years. I'm answering your post as the nurses won't be back until Monday.

    I've never actually come across your question before so I can't, at the moment, give you an answer until I've asked some of my more knowledgeable patient friends. I can only hazard a guess that it will be treated the same as donating blood which we melanoma patients can't do as there is a risk that the melanoma could be in the blood stream (it can spread via the blood stream or the lymphatic system). The only exceptions are for basal cell patients & precancerous conditions (ie. in-situ melanoma) as the tumour hasn't grown deep enough to be able to spread into the blood stream.

    Whilst I ask around I will send you a friend request. If you accept it I can private message you what I've learned & you ask me any other questions you may have regarding your diagnosis. Meanwhile, good luck with your treatment.

    Angie (Stage 3 melanoma patient since 2009)

Reply
  • Hi Ged,

    I'm not a nurse but I have been a melanoma patient for many years. I'm answering your post as the nurses won't be back until Monday.

    I've never actually come across your question before so I can't, at the moment, give you an answer until I've asked some of my more knowledgeable patient friends. I can only hazard a guess that it will be treated the same as donating blood which we melanoma patients can't do as there is a risk that the melanoma could be in the blood stream (it can spread via the blood stream or the lymphatic system). The only exceptions are for basal cell patients & precancerous conditions (ie. in-situ melanoma) as the tumour hasn't grown deep enough to be able to spread into the blood stream.

    Whilst I ask around I will send you a friend request. If you accept it I can private message you what I've learned & you ask me any other questions you may have regarding your diagnosis. Meanwhile, good luck with your treatment.

    Angie (Stage 3 melanoma patient since 2009)

Children
  • Angie 

    I am just out 

    I will reply later 

    appreciate your response 

    xx

  • Hi Angie 

    I am now home . The 2 moles was cut out in November.

    i got the news on Friday / one is Stage 1 , the other is a BC - so no concerns 

    They mentioned as stage 1 , no tretament and will keep a check on me .

    Not sure what that means as NHS is so overwhelmed. 
    scan / MRI - would they do this at all ?

    my appointment is on Monday in Nottingham to donate platelets/ will still go through and discuss with them and see what they say 

    how is yours being treated? 

    regards 

  • Hi Ged,

    Glad to hear it's Stage 1, I'm assuming 1a as you would be offered a Sentinel Lymph Node Biopsy if Stage 1b.

    At 1a you will be monitored with check ups for a short period of time but you won't get scans etc unless you present with a worrying symptom. The NHS are certainly stretched & patients are finding that their 3 month check ups are becoming 4 or 5 month, or their 6 month check ups become 8 months. However, if in between times a patient finds a worrying mole/lump/symptom they should ring their consultant's secretary to get an earlier appointment. If you haven't had a follow up appointment since November I suggest you ring the secretary or CNS if you have a contact number, so you don't slip through the net for months.

    I was initially diagnosed 1b in 1996 and treated with removal & 5 years of check ups. Sadly it returned in 2009, having spread to my groin & pelvic nodes. I had a full clearance of nodes from my groin & pelvis and then check ups, with the odd scan, until 2020 when I was discharged as being NED (No Evidence of Disease) the melanoma equivalent of remission. I have an open door policy with my consultant & I've since seen him twice for worrying lesions removed so I've been very, very lucky. Since 2018 newly diagnosed Stage 3 patients now also have adjuvant drug therapy to help prevent a recurrence. I feel lucky that I've survived this far without the drug therapy but I'm always vigilant as, with my history, it can come back at any time.