Concerned about time frames for starting treatment

Hi, I was diagnosed with invasive ductal carcinoma on 18th January. I have two lumps, but it also seems to have spread into other breast tissue. I've had numerous biopsies, mri and ct scan, which all happened quite quickly. I will need chemo first and Herceptin as I'm HER2 positive. I've just received a letter for my first oncology appointment on 26th February 24. I am really concerned that it is so far away and as one lump is grade 3, could spread further during this time. Just wondered if you could offer any reassurance, thanks.

Parents
  • I was diagnosed with the same mid September 2023. I had left breast Mastectomy and all armpit lymph nodes removed at the end of October. I was told I’m cancer free since surgery. Oncology want to do preventative chemo, 2x9 week blocks, 3 weeks radiotherapy and herceptin injections for a year. I’m confined to a wheelchair because of lifelong physical disability. I’m worried about possible treatment side effects as I’ve not much support to help me deal with them if they occur.

  • Hi Corrielea, sorry to hear you have been through this too. Unfortunately I have to go through chemo first with Herceptin, before having a mastectomy.  Think is is because it has already spread into breast tissue. My oncology appointment has now been moved from 26th February to the 14th February, which is better. It must be difficult for you to having a disability as well. Have you talked to your care team about your worries about side effects? I'm  sure they will be able to reassure you. Wishing you well in your journey moving forward. Xx

Reply
  • Hi Corrielea, sorry to hear you have been through this too. Unfortunately I have to go through chemo first with Herceptin, before having a mastectomy.  Think is is because it has already spread into breast tissue. My oncology appointment has now been moved from 26th February to the 14th February, which is better. It must be difficult for you to having a disability as well. Have you talked to your care team about your worries about side effects? I'm  sure they will be able to reassure you. Wishing you well in your journey moving forward. Xx

Children
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