You have asked about angioimmunoblastic T-cell lymphoma ( AITL). I wasn't sure of your exact situation if you were asking for yourself or someone on their behalf.
As you probably know AITL is a type of non-Hodgkin lymphoma (NHL). You may have seen this already, we do have information about AITL on our website, which talks about what it is and how it is treated. There is mention of some new drugs that are being researched for this particular type of lymphoma. You may find it helpful to read alongside our general information about NHL.
We do have general information about clinical trials and how they work along with a trials database that lists trials that we have been permitted to put onto our website. This page will take you to the NHL clinical trials. We are not directly involved with the trials or the recruitment of people on to the trials it has to be a doctor to the doctor in charge of the trial. If you do see a trial you are interested in have a chat with your specialist or nurse specialist (CNS) and they will tell you if you might be eligible.
Lymphoma Action has information about AITL on the website, how it is treated, and research into newer treatments. You can also see their trials database.
You may be aware that AITL, is a less common type of NHL and you may be interested to know that Lymphoma Action has rare lymphoma support online meetings.
I hope this reply is helpful. Please get back to us if you need any more information or support. You may find it helpful to talk things through with one of the nurses on our helpline. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.
Good morning, I was diagnosed, via needle biopsy, in January 2022. I understand that due to the rarity of this type of cancer there are no trials as there is an insufficient number of participants available?
I have tried to read, from the links in your reply, about newer treatments but to no avail. Please could you provide me with some more information?
Hi Jemma I did the same research as you on trials and because there is on average only 146 cases reported per year across the UK, I couldn’t find anything seems to be linked to the Epstein Barr virus. Not sure where you are on the AITL path or what treatment your having or had but seems to follow the same path of CHOP and Autoglous stem cell transplant. From what I have read is allogenic is more successful but has a higher risk and costs the NHS more so on most cases for people over a certain age a auto is the only option available . There is also a treatment called CAR T that your own cells are modified to recognise the cancer cells in the blood , I wish you well
Hi Jemma I did the same research as you on trials and because there is on average only 146 cases reported per year across the UK, I couldn’t find anything seems to be linked to the Epstein Barr virus. Not sure where you are on the AITL path or what treatment your having or had but seems to follow the same path of CHOP and Autoglous stem cell transplant. From what I have read is allogenic is more successful but has a higher risk and costs the NHS more so on most cases for people over a certain age a auto is the only option available . There is also a treatment called CAR T that your own cells are modified to recognise the cancer cells in the blood , I wish you well
