Good afternoon. I finished my treatment, both chemotherapy and radiotherapy in August last year. After my last scan it showed that the tumour is ‘inactive’. However, the tumour is high in my oesophagus and has left me totally blocked (even water cannot go down). It could not be operated on as it is too high up in the oesophagus , I cannot have a stent for the same reason. Dilation isn’t possible because of the danger of perforation. My oncologist says I may have to live with it and be on a feeding tube for the rest of my life.
I have asked for a second opinion as, surely, I can’t be the first person to have their oesophagus totally blocked? (I don’t mind where I travel to in the country to find the best person to give that second opinion). Are there any members of the organisation who might be able to help who has been or is in the same position as myself. Most people that I have been in contact with have always had a gap and been able to eat and drink a little.